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Rare Kidney Disease (RKD)
Scientific Network (SciNet)
The RKD SciNet is driven by our annual summit where we seek to:
- Identify unmet needs in glomerular kidney disease treatment and education
- Engage in case study presentations to further enhance clinical management
- Discuss and debate new advances in clinical trials methodology in rare kidney disease
- Provide a forum for like-minded peers and experts to discuss enhancements to clinical practice
Listen to leading glomerular disease experts share their insights!
See video transcript
Ashté Collins [00:00:25] So as an academic nephrologist who is busy in clinical practice, I found this to be an incredibly valuable meeting. The collaboration, the collection of all of the thought leaders and experts in this space has really been eye opening and it really gives us a lot of promise as we move forward in rare kidney disease. I’m thrilled to be a part of this. I’m thrilled to have been invited and to be practicing nephrology at a time when we can really make substantive change with our patients. So you know this all started yesterday when we heard the patient’s story, and we’re really being able to put a face on the diseases that we’re trying to take care of.
Yasir Qazi [00:01:03] And a meeting like this puts everybody in the room together, whether it’s academia, it’s private practice, a lot of experience, and kind of like analyzing where we’re at in terms of, at the end of the day, getting our patients to where they need to be, you know, be healthy, be away from dialysis as far and as remote as can be. And so a meeting like this where, you know, folks come in from all over the, you know, we had folks from Europe with, you know, United Kingdom and then from all parts of the United States coming together to, you know, look at what we have and where we can go. So it makes it really, you know, very, very important, very timely. And it’s my first time here. So I really enjoyed it.
Jessica Coleman [00:01:45] I think the unique opportunity that we have here at the RKD Summit is that we have the opportunity to not only talk about what’s currently available therapeutically for our patients, but then also explore the options to come. We’re also getting the opportunity to mix academics and community-based nephrologists, which, for my perspective as a community-based nephrologist, that collegial attitude is so just unparalleled. It’s priceless.
Tobias Huber [00:02:12] I guess we made a huge step forward by identifying the progress that we made, by further specifying our path forward and by addressing the next generation of questions to be addressed and the next generation of trials to be set up. So altogether, this summit was a huge success, and I can’t wait for our next meeting next year.
Dive into our collection of engaging RKD podcasts!
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Rare Kidney Disease Show
Talking Glomerular Nephropathies Exciting Times Ahead
The Rare Kidney Disease Show is your source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology.
Go to RKD ShowExplore Travere’s research in RKD
Effects of Proteinuria Reduction on Delay of Kidney Failure in Patients With Immunoglobulin A Nephropathy
Speakers: Elle Coe, Alex Mercer, Kevin Carroll, Leah Conley, Daniel Gale, Bruce Hendry, David Pitcher, Crystal Traylor, Jonathan Barratt
Matching-Adjusted Indirect Comparisons of eGFR Slopes in the PROTECT Study With UK RaDaR IgA Nephropathy Population and the Control Arm of NefIgArd
Speakers: Wu Gong, Ulysses Diva, Mark Bensink, Xinglei Chai, Yanwen Xie, Sophie Gao, Bruce Hendry, Alex Mercer, Zheng-Yi Zhou, Brad Rovin, Jonathan Barratt
Sparsentan (SPAR) as First-Line Treatment of Incident Patients With IgA Nephropathy (IgAN): Findings From the SPARTAN Trial
Speakers: Chee Kay Cheung, Stephanie Moody, Neeraj Dhaun, Siân Griffin, Alexandra Howson, Radko Komers, Alex Mercer, Matthew Sayer, Smeeta Sinha, Lisa Willcocks, Jonathan Barratt
Sparsentan vs Irbesartan in Patients With Focal Segmental Glomerulosclerosis (FSGS): Results From the Phase 3 DUPLEX Trial
Speakers: Michelle N. Rheault, Howard Trachtman, Edward Murphy, and Radko Komers on behalf of the DUPRO steering committee and DUPLEX investigators
Sparsentan Shows Clinically Meaningful Treatment Effects vs Irbesartan in Patients With IgA Nephropathy (IgAN) in the Phase 3 PROTECT Trial
Speakers: Brad Rovin, Jonathan Barratt, Edward Murphy, Rob Geletka, Radko Komers, Vlado Perkovic, on behalf of the DUPRO Steering Committee and PROTECT investigators Presenter: Donald R. Frailey
Preliminary Findings From the Phase 2 EPPIK Study of Sparsentan in Pediatric Patients With Selected Proteinuric Glomerular Diseases
Speakers: Howard Trachtman, Rosanna Coppo, Nuhira Ahmed Masthan Ahmed, Kenneth V. Lieberman, Alex Mercer, Michelle Rheault, Moin A. Saleem, Teresa Shafer, Crystal Traylor, Radko Komers
Concomitant Sparsentan (SPAR) and Sodium-Glucose Cotransporter-2 Inhibitors (SGLT2i) in Patients with IgA Nephropathy (IgAN) in the PROTECT Open-Label Extension (OLE)
Speakers: Priscila Preciado, Laura Kooienga, Robert Malecki, Alex Mercer, Nuhira Ahmed Masthan Ahmed
MA-DS-24-0067 | February 2025